(I got this from one of my "autism mommy" friends and I thought it was so good, I'd share it here. . .it's not only applicable for teacher and doctors, but for friends and extended family members of parents of children with special needs.)
From a Parent
Be Gentle with Me - I may be grieving (especially at first). I may need time to accept, then hurt over, the loss of the "normal" child I thought I would have.
Be Patient with Me - Remember that I have as many as 4 to 20 professionals telling me what I need to do to help my child. It's often overwhelming.
Respect Me - You are the expert in therapy, medicine, or education. I am the expert on my child.
Listen to Me - I spend hours thinking about ways to make life better for my child. I generally know if something won't work at all. I have a lot of good ideas. I read a lot, too.
Encourage Me - Take the time to tell me what I'm doing right. I never feel like I'm doing enough. Point out even the smallest progress you see, because sometimes small progress is all there is to keep me trying.
Understand Me - Understand that as hard as things get sometimes, I would not trade this precious person and all he adds to my life and family for a normal child. He is special, as all children are special, and I know that, even when I'm struggling.
Remember Me - If I burn out, I can't change my job. No one else will step in and take over for me. I am in this for the long haul, so I need to pace myself.
Thank You - Thank you for choosing to be a part of my child's life. Thank you for your patience and dedication. Thank you for caring.
- Robin Prince Monroe
3 comments:
This is so good. Thanks.
I would add the grieving part returns over and over as you hit each new age/stage and realize all over again all the ways your child will not be like everyone else. Thanks for putting this one up.
Can I just say--I love this picture, and I love the insight in this post.
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